Our little smidge- October 11, 2007

I write this with the heaviest heart. Our precious gift has a rare, rare genetic disorder. So rare, there are 23 cases. Think about that for a minute. 23 cases recorded. So why us? Why this baby? Because I truly believe God has a plan for all our lives with the gift He has given us. We know, after today, that Laynie probably won't live much past birth. She has serious brain defects that showed up today on the new super power ultrasound that OU Medical Center just got. Our precious smidge was the first baby on that machine. Her little brain has not only a cyst, but excess fluid retention as well. And with this new machine, came the ability to see the stenosis in the small valves of her heart. Which means most likely, that blood supply will not get to our baby the way it needs to. She has grown in size, which is a blessing. But with the severity of the brain mass, she will be severely handicapped. Lacey, my wonderful blessing of a daughter, has chosen not to terminate. She will continue with the visits to the doctor, in hopes of giving them more insight into this rare disorder. The doctors don't show much hope for the outcome, but we will fight on, and love each other and lean on each other, and know that God has a plan for her life. "She is fearfully and wonderfully made" Psalms 139 God has had her life planned before she was conceived. That will be our strength through these next few months. Keep praying, because God is good. All the time.